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Remember our children…

Remember our children...

On April 1, 2014, please use this graphic and spread it as far and as wide as you can. Post it to your wall, use it as your avatar, post it to your friends’ walls and group and pages, tweet it, pin it, do whatever you can think of so that people will remember the children who have died after an elopement.

Shared by Sheila Medlam, who honors her son, Mason Medlam’s, memory.

https://www.facebook.com/events/593656577387389/594936667259380/?notif_t=event_mall_comment

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The Witch’s Wand by Sheila R Medlam

The Witch's Wand by Sheila R Medlam

The land of Arias has always been filled with peace and prosperity until the day the black sword of Volor shatters the land, bringing with it devastation, poverty, war and famine. Now, after twenty years of hopelessness, the lost daughter of Arias’ King and Queen has returned and with her the chance of freedom. The only problem is, she’s only eleven and has no idea how to save the world.

Nora and her companions seek to find their only hope of salvation, the prophesied Witch’s Wand. But fulfilling a prophecy isn’t easy, especially when the people you have to learn to trust are your enemies and magic doesn’t seem to work the way it should around you.

http://www.lulu.com/shop/sheila-r-medlam/the-witchs-wand/hardcover/product-21535998.html?fb_action_ids=767514079925789&fb_action_types=og.likes&fb_source=other_multiline&action_object_map={%22767514079925789%22%3A1527463400813477}&action_type_map={%22767514079925789%22%3A%22og.likes%22}&action_ref_map=[]

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Let’s help Ian win an adaptive bike!

Let's help Ian win an adaptive bike!

Every little boy deserves to have a bike. Let’s help Ian win a super-cool, adaptive bike so he can experience one of the best things a boy can learn how to do! We need your help and your votes! Pass this on.

Ian is one of the most awesome kids in the world. He is funny, silly and too cute for words. He also has autism. This bike could make a big difference to this particular kid! It would be great to see something inspiring go viral for once. Help make it happen.

https://www.friendshipcircle.org/bikes/2014/03/ian-4/

Help save this boy’s life…Re-post and share

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Peter Johnson Jr. reported this morning on a harrowing story pitting the family of a seven-year-old Virginia boy against a drug company. Josh Hardy was stricken with an infection called an adenovirus after undergoing a bone marrow transplant in January.

 

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Josh has been fighting and winning his battle against cancer, along with heart and kidney issues, since he was less than a year old. Now, his mother, Aimee Hardy, says he will die if the curable virus is not treated soon.

Doctors believe the adenovirus can be cured with a drug named Brincidofovir, which is in the trial stage and has not been approved by the FDA. Doctors say the drug has been used successfully on kids with Josh’s infection.

Aimee says the drug maker, Chimerix, has so far refused their urgent pleas to give doctors the drug on “compassionate use” grounds. Kenneth Moch, the company’s president and CEO, said Friday that the company cannot approve “compassionate use” of the drug right now because it is in phase-three of the clinical development process.

“We understand this great need.That’s what drives us to focus on getting it available. It creates these really difficult complex situations where the need to pursue the formal clinical development under the FDA process takes precedent over other needs. As we progressed to larger and more complex safety trials, we made the decision two years ago to stop the program and focus resources on earning FDA approval,” said Moch, who added that his company is “acutely aware of the situation faced by this patient.”

Fox and Friends pointed out this morning that Chimerix has received $72 million in federal funds. Aimee called on the company to change its position, saying “there has got to be some other way to make this available to everyone.”

“To me it’s almost a crime not to make it available to everyone who needs it and I definitely am going to keep fighting for my son until they give it,” said Hardy.

Johnson said he was in contact with Moch over the weekend, asking him whether it might change his mind if he were to visit Josh at the Memphis ICU. Moch maintained that a visit would not change his mind, Johnson explained.

Hardy detailed that her son is very frail right now and has trouble staying awake because of all the pain medication he’s being given.

“Because of this unwillingness to release this drug, I have to leave him and come talk to you and it infuriates me,” she said.

For more on Josh, you can visit his Caring Bridge page. Hardy asked people to take to Twitter and Facebook and voice their support using #savejosh.

Below is information on how you can contact Chimerix. Watch Johnson’s interview with Hardy above.

Connor Elliott Graham – December 25, 2013

 

Connor Elliott Graham was missing from his bed when his parents checked on him at 7am.Connor Elliott Graham was missing from his bed when his parents checked on him at 7am. With his elephant toy in one hand and his Teenage Mutant Ninja Turtles pyjamas on, little Connor Elliott Graham simply wandered off into the night after Christmas. A 10-hour-search on Thursday by police, the State Emergency Service and hundreds of locals eventually located the four year-old’s body in the Clarence River, just metres from his aunt and uncle’s home on Chatsworth Island, north of Grafton. His parents, Caity and Dave Graham, woke on Boxing Day to find that Connor, who was autistic, was not in his bed. They had put Connor, his baby sister Matilda and baby brother Alex to sleep on Christmas night and checked on them at 3.30am because Connor had woken at 3am the previous night. When they checked again at 7am, the boy was gone.  His aunt, Kim Macfarlane, said the fly screen on his window had been pushed out and his toy elephant was found on the bank of the river close to her home. They searched the back and front yards before running down Chatsworth Road, screaming for help. ”We were out on our front verandah first thing this morning and the family came bolting up the road, just frantic, running in and out of every house asking if we’d seen a little redhead boy,” neighbour Robynne McKerracher said. The community of about 150 immediately mustered boats, cars and torches to search the cane fields and swampy rivers that surround the area. The PolAir and Westpac helicopters joined the search, along with the dog squad, Royal Life Saving volunteers and 29 SES members. A photo of the red-haired boy was shared thousands of times on Facebook, and Ms Macfarlane pleaded for help to find her ”beautiful nephew”. ”We are beside ourselves with worry,” she posted. However, just before 5pm, the family’s worst fears were realised when Connor’s body was found in the water. Inspector Brendan Gorman from Coffs/Clarence Local Area Command said: ”We believe the child left the premises of his own volition.”
 

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Connor Elliott Graham – December 25, 2013

Connor Elliott Graham - December 25, 2013

With his elephant toy in one hand and his Teenage Mutant Ninja Turtles pyjamas on, little Connor Elliott Graham simply wandered off into the night after Christmas.

A 10-hour-search on Thursday by police, the State Emergency Service and hundreds of locals eventually located the four year-old’s body in the Clarence River, just metres from his aunt and uncle’s home on Chatsworth Island, north of Grafton.

His parents, Caity and Dave Graham, woke on Boxing Day to find that Connor, who was autistic, was not in his bed.

They had put Connor, his baby sister Matilda and baby brother Alex to sleep on Christmas night and checked on them at 3.30am because Connor had woken at 3am the previous night.
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When they checked again at 7am, the boy was gone.

His aunt, Kim Macfarlane, said the fly screen on his window had been pushed out and his toy elephant was found on the bank of the river close to her home. They searched the back and front yards before running down Chatsworth Road, screaming for help.

”We were out on our front verandah first thing this morning and the family came bolting up the road, just frantic, running in and out of every house asking if we’d seen a little redhead boy,” neighbour Robynne McKerracher said.

The community of about 150 immediately mustered boats, cars and torches to search the cane fields and swampy rivers that surround the area.

The PolAir and Westpac helicopters joined the search, along with the dog squad, Royal Life Saving volunteers and 29 SES members.

A photo of the red-haired boy was shared thousands of times on Facebook, and Ms Macfarlane pleaded for help to find her ”beautiful nephew”.

”We are beside ourselves with worry,” she posted.

However, just before 5pm, the family’s worst fears were realised when Connor’s body was found in the water.

Inspector Brendan Gorman from Coffs/Clarence Local Area Command said: ”We believe the child left the premises of his own volition.”

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